Thursday, January 22, 2009
Fighting Weight/Kryptonite
Both Mia and Adam are over their birth weight!! Adam weighs 4lb14oz (5lb is just around the corner) and Mia weighs 4lb3oz (5lb is around several corners). Both are breast feeding 1-2X/day and bottle feeding every other feeding. They sometimes finish their bottle and sometimes don't and get the rest through their feeding tubes. Each has their individual Kryptonite - Mia's is body temperature, despite putting on more weight her temperature hangs around 97.5 (lowest acceptable threshold) and 98.0. Adam's is still his breathing, he fluctuates greatly between 21% O2 (room air concentration) and 30% O2 with a flow setting of 0.1 to 1.0. Especially during feeding times or other times of stimulus he struggles. These are the main factors besides the full bottle/nursing feed factors that are keeping them in the NICU. They continue to make progress but it is honestly discouraging that they continue to struggle greatly with their individual obstacles.
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3 comments:
I am so sorry those little ones are still fighting some battles. I can relate to the discouraging moments and days for that matter. Try hard to look at the good things, you guys are doing great at that. There really is no consolation for not being able to take your babies home, I know that. Almost 8 years after my first trip down NICU lane, it still is a hard memory and at the same time very amazing to see the miracle that is my son(s). You have two tiny/huge miracles and will take them home soon. Hang in there!
Keep hanging in there~
I read your entry about your discussion with Mia to my girls- that was so funny! We so appreciate your wonderful sense of humor through all the struggles.
I know everyday is long when you're in the NICU. Just keep remembering that soon you'll be looking back...
Sounds like many of us can relate to your desire to be positive but the reality of watching others having to care for your precious babies can be very discouraging. I'm very thankful that they haven't gotten any serious infections and are steadily marching forward overall, even if it is two steps forward, 1-sometimes 3 steps back each day. Imagine this.... There will be a day when God will give you NICU parents to pray over and offer encouragment to after YOU have had a busy day chasing your twins around the house. :-) It's going to happen sooner than you can feel it but it's so there. Hope you have a slow day planned tomorrow, be safe in this weather. Love you guys! Jenn
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